-associated tumors, e.g. leading to distant metastases, are renal clear cell carcinoma, malignant pheochromocytoma, and ICTs (reviewed by Lonser et al . (2003) ). In this study, we sought to evaluate a population-based registry of patients with NETs for the
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Zoran Erlic, Ursula Ploeckinger, Alberto Cascon, Michael M Hoffmann, Laura von Duecker, Aurelia Winter, Gerit Kammel, Janina Bacher, Maren Sullivan, Berend Isermann, Lars Fischer, Andreas Raffel, Wolfram Trudo Knoefel, Matthias Schott, Tobias Baumann, Oliver Schaefer, Tobias Keck, Richard P Baum, Ioana Milos, Mihaela Muresan, Mariola Peczkowska, Andrzej Januszewicz, Kenko Cupisti, Anke Tönjes, Mathias Fasshauer, Jan Langrehr, Peter von Wussow, Abbas Agaimy, Günter Schlimok, Regina Lamberts, Thorsten Wiech, Kurt Werner Schmid, Alexander Weber, Mercedes Nunez, Mercedes Robledo, Charis Eng, Hartmut P H Neumann, and for the VHL-ICT Consortium and the German NET Registry
Rodrigo Almeida Toledo
Broom R Freeman M Knox JJ 2009 Rationale and evidence for sunitinib in the treatment of malignant paraganglioma/pheochromocytoma . Journal of Clinical Endocrinology and Metabolism 94 5 – 9 . ( doi:10.1210/jc.2008-1836 ) Kaelin WG
Susan Richter, Timothy J Garrett, Nicole Bechmann, Roderick J Clifton-Bligh, and Hans K Ghayee
regression and stability with treatment ( Joshua et al. 2009 ). Newer data from the First International Randomized Study in Malignant Progressive Pheochromocytoma and Paragangliomas (FIRSTMAPPP, NCT01371201) indicate that 35.9% of patients with progressive
Sophie Moog, Betty Salgues, Yasmine Braik-Djellas, Thomas Viel, Daniel Balvay, Gwennhael Autret, Estelle Robidel, Anne-Paule Gimenez-Roqueplo, Bertrand Tavitian, Charlotte Lussey-Lepoutre, and Judith Favier
Cote G Dumont F Cabanillas M Arfi-Roufe J Berdelou A Moon B Al Ghuzlan A 2014 Therapy of endocrine disease: treatment of malignant pheochromocytoma and paraganglioma . European Journal of Endocrinology 171 R111 – R122 . ( https
Frédéric Castinetti, Alexander Kroiss, Rakesh Kumar, Karel Pacak, and David Taieb
-Vega LJ Buffet A De Cubas AA Cascon A Menara M Khalifa E Amar L Azriel S Bourdeau I Chabre O 2014 Germline mutations in FH confer predisposition to malignant pheochromocytomas and paragangliomas . Human Molecular Genetics 23
Saila Kauhanen, Marko Seppänen, Jari Ovaska, Heikki Minn, Jörgen Bergman, Pirkko Korsoff, Pasi Salmela, Juha Saltevo, Timo Sane, Matti Välimäki, and Pirjo Nuutila
in all three study patients ( Kumar et al . 2006 ). Moreover, in localizing pheochromocytomas by [ 18 F]FDG PET, the sensitivity was 70% for solitary benign or malignant disease ( Shulkin et al . 1999 ). The lack of sensitivity of [ 18 F]FDG PET in
J Crona, F Beuschlein, K Pacak, and B Skogseid
dacarbazine treatment improves survival in patients with metastatic and unresectable malignant pheochromocytomas/paragangliomas . Hormones and Cancer 8 108 – 118 . ( https://doi.org/10.1007/s12672-017-0284-7 ) 10.1007/s12672-017-0284-7 Assie G Letouze E
Carole Guerin, Pauline Romanet, David Taieb, Thierry Brue, André Lacroix, Frederic Sebag, Anne Barlier, and Frederic Castinetti
development of pheochromocytoma (PHEO), and less frequently of hyperparathyroidism (HPTH). The aim of this review is first to detail the main characteristics and the management of MEN2 PHEO and then to define the main other etiologies of hereditary bilateral
Lucie Evenepoel, Raphaël Helaers, Laurent Vroonen, Selda Aydin, Marc Hamoir, Dominique Maiter, Miikka Vikkula, and Alexandre Persu
Dear Editor, Pheochromocytomas and paragangliomas (PPGL) are rare neuroendocrine tumors arising from the adrenal medulla and extra-adrenal paraganglia, respectively. Forty percent are explained by germline mutations in known susceptibility
Martin Ullrich, Josephine Liers, Mirko Peitzsch, Anja Feldmann, Ralf Bergmann, Ulrich Sommer, Susan Richter, Stefan R Bornstein, Michael Bachmann, Graeme Eisenhofer, Christian G Ziegler, and Jens Pietzsch
Jeunemaitre X Gimenez-Roqueplo AP , 2007 Succinate dehydrogenase B gene mutations predict survival in patients with malignant pheochromocytomas or paragangliomas . Journal of Clinical Endocrinology and Metabolism 92 3822 – 3828 . ( https://doi.org/10
