Measurement of quality of life in carcinoid/neuroendocrine tumours.

in Endocrine-Related Cancer
Authors:
J K Ramage Carcinoid Clinic, Kings College Hospital and Department of Gastroenterology, North Hampshire Hospital Basingstoke, UK. John.Ramage@nhht.nhs.uk

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A H Davies Carcinoid Clinic, Kings College Hospital and Department of Gastroenterology, North Hampshire Hospital Basingstoke, UK. John.Ramage@nhht.nhs.uk

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EORTC Quality of Life Group Carcinoid Clinic, Kings College Hospital and Department of Gastroenterology, North Hampshire Hospital Basingstoke, UK. John.Ramage@nhht.nhs.uk

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Volume/Issue:
Volume 10: Issue 4
Article Type:
Abstract
Page Range:
483–486
Online Publication Date:
Dec 2003
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Quality of life is multi-dimensional, including issues relating to symptoms from the disease but also social, emotional, functional and financial domains. Debate remains on the true definition of quality of life and its measurement. Quality of life measurements are best done by patients themselves, although, in some situations a proxy such as carer or relative can be substituted. Healthcare workers can over- or underestimate overall quality of life. Currently used devices for measuring quality of life in cancer include the European Organization for Research and Treatment of Cancer (EORTC) QLQ-C30, which is a generic tool for all cancers and which requires the use of add-on modules for specific cancers. We are developing a separate module for carcinoid/neuroendocrine tumours, in accordance with the EORTC guidelines on module development, which will be translated into five languages and will be available for use throughout Europe.

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Print ISSN:
1351-0088
Online ISSN:
1479-6821
Page(s):
4
Print Publication Date:
01 Jan 2003
Online Publication Date:
Dec 2003